This morning I had a meeting with our support coordinator from the Dept of Developmental Disabilities (DDD). In Arizona, if your kiddo has more than two “moderate to severe” deficits/delays, DDD covers your child instead of Early Intervention. This was our first follow up meeting since G started services through DDD for speech, cognitive and social delays. While I know she hasn’t made much progress, it was kind of a giant bummer to actually hear the modest easily achievable goals that we set six months ago, and know that she’s met none of them. I know we are making progress, just really slow progress. But progress is progress.
I don’t think we really get anything from the meeting other than checking off some paperwork and continuing on with the service she has, speech therapy, which they cover 50% of – and our insurance company covers 0% – thank you Aetna (insert eye roll). Our state’s budget crisis has cut off so many of the services and support, that there isn’t much left for them to offer. The will send someone out to evaluate if G needs or can benefit from occupational therapy, so I guess that is something and better than nothing.
As G gets older, it’s more clear that we are dealing with some real issues, versus just being a bit behind the curve or working at her own pace, so it is probably time to step up the services. We can’t be in denial or just hope for the best, we need to be proactive and take as much action as possible. There does not appear to be a “she’ll catch up on her own” thing going on here. I hate having to constantly worry about what services cost, but I think that is a reality for SO many people. Even those with great insurance who work for major corporations, as my husband does, often find that their insurance pretty much covers nothing for kids like G. Though they do cover my tube of Retin A – go figure. I mean acne is surely a larger health concern than never speaking or understanding people. Grrrr. It is incredibly frustrating as we pay our insurance premiums to realize they do not cover any of the services our daughter needs.
We will continue speech therapy, look into the occupational therapy and I will hunt down whatever else we can do that might help her. We are waiting for an appointment with a pediatric neurologist so that we can hopefully get a better idea of what is going on. At some point I may need to stop and find what might help me as well – my husband and I could probably benefit from having dinner out, without any children, more than twice a year. What do they call that? Oh yeah, a babysitter. Do they exist or is that an urban legend? I’m not entirely sure.
I remember these toddler years being tough with my first one, but it’s a very different experience with the special needs thrown into the mix, and I think a break every now and then could do us all some good. And if not maybe I can arrange to buy a commercial grade Island Oasis machine to make amazing frozen margaritas at home while I pretend that I have a babysitter and get to leave the house! To heck with a bucket list, I just need a bucket of margaritas.