So our speech therapist is almost certain that G has Childhood Apraxia of Speech. Also called CAS. Confusingly also called dyspraxia. It is a neurological condition, that very simply put, means the words can be in her little head, but she can’t get the message to connect with her mouth to make the words happen. It is a motor planning issue, and can also affect fine motor skills, and can be accompanied by a variety of other “soft” neurological issues, hypotonia and sensory issues.
They say it is often over diagnosed, but after months of working with G, her therapist is pretty confident that apraxia is one of, if not the main issue that G is dealing with. She tries to speak. Her mouth starts to move but seems to almost fumble around, she gropes for words and often can’t seem to figure out what the heck to do with her tongue. She can make sounds clearly once or twice, then nothing. After extensive insomnia fueled research, I have to say, it fits. And it fits well. I keep going back to ‘so many things fit autism’ but her therapists keep saying absolutely not, as did her pediatrician this week. But reading up on apraxia in depth, I see so much of Grace.
Granted we still have doctor’s appointments, testing and what not to go through, but apraxia makes sense in a lot of ways. We certainly want to explore every possibility and make sure we leave no stone unturned, but this is the first thing that has actually made some sense to us. So forward we go, and I’ll keep reading and researching. Hoping to make sense of what doesn’t seem to have much sense. If apraxia is what we are dealing with, it doesn’t mean that it will be an easy road, and will still have a lot of unknowns, but I so badly want to feel like we can find the right direction and maximize the assistance and interventions we are providing for her.